The
Longest
Ten
Years
of
My
Life
A
couple
of
weeks
ago
my
son
turned
ten
years
old
and
it
felt
like
a
gigantic
milestone.
For
the
first
time
in
years
the
image
of
him
in
the
incubator
when
he
was
a
baby
kept
haunting
me
and
my
dreams.
Why
did
I
feel
like
that?
Why
now?
Ten
years
ago
today
my
son
had
just
been
discharged
from
the
hospital.
He
was
so
little,
so
precious,
and
so
sick.
The
dermatologist
had
just
finished
telling
us
that
we
would
be
back
in
the
hospital
to
treat
infections
on
a
weekly
basis
and
that
he
would
most
likely
die
before
his
first
birthday.
We
brought
our
bundle
home
not
knowing
what
the
future
might
bring.
Now
I
know
that
this
Doctor
didn't
know
much
about
the
form
of
the
condition
my
son
has
to
make
these
claims,
I
don't
think
my
son
"conquered"
or
"beat"
the
disorder
or
"proved
the
Doctor
wrong"
as
very
rarely
children
with
my
son's
form
of
EB
die
before
their
first
birthday,
yet,
thinking
back,
ten
years
later,
I
still
think
that
him
being
alive
right
now
is
a
miracle,
as
so
many
of
his
peers
have
succumbed
from
this
awful
disorder
along
the
way.
I
do
feel
he
was
spared.
He
faced
so
many
trying
situations
in
the
past
decade,
from
several
surgeries,
infections
and
school
disasters
to
when
he
was
suffering
from
malnutrition
and
I
was
forced
to
place
a
g-tube
on
him,
which
saved
his
life.
Ten
years
is
a
long
time
in
any
lifetime,
but
to
me
the
past
ten
feel
like
a
lifetime
in
itself.
It's
hard
for
me
to
imagine
how
my
life
was
like
before
bandages,
before
wounds,
before
cries,
and
without
my
precious
son!
I
keep
hearing
people
telling
me
how
time
flies,
how
is
Nicky
already
ten
years
old,
but
to
me,
these
have
been
some
amazing
and
long
ten
years.
The
question
remains,
would
I
change
anything
if
I
could
go
back?
The
answer
is
no.
There
is
nothing
that
could
tear
me
away
from
caring
from
my
boy
or
anything
I
would
have
done
differently.
Maybe
I
would
have
put
the
g-tube
on
him
quicker
or
used
different
bandages
on
his
hands
when
they
were
healing
from
surgery,
but
I
know
in
my
heart
I
did
the
best
I
knew
how
at
the
time,
and
when
I
knew
better
I
did
better.
To
Nicky...
my
love.
Here's
to
ten
more
amazing
years!
Posted December 10, 2006
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