~EB Memorials~

Simplex

Harrison "Beto" Wong

Harrison "Beto" Wong was born on October 8th, 2002 and died on March 29th, 2004 DOD: 03-29-04 due to Respiratory Arrest secondary to complications due to EB Simplex Dowling Meara (severe).
Our angel boy's short presence on Earth touched many lives and continues to impact our lives in positive and enlighted ways. We shall always remember our Harrison for the love and joy he brought into the lives of his parents and two older sisters, Lian and Cailin. We miss you dearly, Beto, and wait anxiously to be reunited in our Lord's Kingdom.

Linda Wong

 

In the Above Pictures... Beto in basket when he was 2months old, Beto in high chair when he was 9 months old, and Beto in hotel room was the last photo of him taken at the NPCC in Palo Alto, he was 17months old...
Email Beto's Mommy!

Garrett James Denslaw

Garrett James Denslaw was born on December 6th, 2004 and died on December 18th, 2004 due to complications of two infections, MRSA and Pseudomonas. He had EB Simplex Dowling Meara. He is loved and missed dearly by his parents, Sara and Joe, and sisters, Samantha (EBS-DM) and Summer (EB free).

Email Garrett's Mommy!

Click Here to visit his family's website

If your child died from complications of EB and you would like his or her photo on this page, please email Silvia...THANK YOU!!

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The Dance

Looking back on the memory of
The dance we shared 'neath the stars above
For a moment all the world was right
How could I have known that you'd ever say goodbye

And now I'm glad I didn't know
The way it all would end the way it all would go
Our lives are better left to chance I could have missed the pain
But I'd of had to miss the dance

Holding you I held everything
For a moment wasn't I the king
But if I'd only known how the king would fall
Hey who's to say you know I might have changed it all

It's my life is better left to chance
I could have missed the pain but I'd of had to miss the dance

  

Playing: The Dance by Garth Brooks
No act of kindness, no matter how small, is ever wasted. -Aesop
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Last Updated: April 10, 2006