What are mailing lists?
A Mailing list is a gathering place of people with similar interests. In this case, our similar interest would be EB. Once you join, by sending an email to a specific email address, that question, comment or answer, will be distributed to all members that belong to that group, and anyone that belongs to that group can answer, comment etcetera.
Please refer to the description beside each list to get a better understanding of what they are about.
EB News List
To receive an email anytime there are any news in the world of EB
of any sort (approx 3-4 emails per week) click below:
message boards are also available at the following
A group of moms and
friends (anyone can join), active in their intent of raising awareness for
Epidermolysis Bullosa. This is not a support nor chat group. Anyone is
welcome to submit their idea or file to be downloaded to list members
EB Angels List
This list is for
parents that have lost children or anyone that has lost a loved one to
This is not a mailing
list per se, but rather a database that is downloaded each month of all
parents/patients that are willing to be contacted by other EB families.
Because we want to keep this database available to only other EB families,
make sure to reply to the introductory message with your personal EB
legacy. Subscribers wishing to join who do not reply to the initial
message within 10 days will be automatically denied membership. We do this
to secure the families belonging to the database. Thank you!
Foreign Language Lists!
If anyone speaks the following languages and you are either an EB parent or patient, relative, Dr or Nurse or if you are interested in EB, no matter the form, you are welcome to join.
| EB Info World was Created on 11/20/1997 - Background Ribbon Graphic by Dominic
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