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Mailing Lists

What are mailing lists?

A Mailing list is a gathering place of people with similar interests. In this case, our similar interest would be EB. Once you join, by sending an email to a specific email address, that question, comment or answer, will be distributed to all members that belong to that group, and anyone that belongs to that group can answer, comment etcetera.

Please refer to the description beside each list to get a better understanding of what they are about.

EB News List

To receive an email anytime there are any news in the world of EB of any sort (approx 3-4 emails per week) click below:
This list is available on the EB Info World's main server (CLICK HERE to join) and the sister group at Yahoo.

EB News message boards are also available at the following URLS:
NING http://ebnews.ning.com/
MYSPACE PROFILE http://www.myspace.com/ebawareness
MYSPACE GROUP http://groups.myspace.com/ebworld
FACEBOOK http://www.facebook.com/group.php?gid=16884589256
CAFEMOM http://www.cafemom.com/group/6629

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EBworld List

A group of moms and friends (anyone can join), active in their intent of raising awareness for Epidermolysis Bullosa. This is not a support nor chat group. Anyone is welcome to submit their idea or file to be downloaded to list members monthly.
CLICK HERE TO JOIN

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EB Angels List

This list is for parents that have lost children or anyone that has lost a loved one to Epidermolysis Bullosa.
CLICK HERE TO JOIN

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EBdatabase List

This is not a mailing list per se, but rather a database that is downloaded each month of all parents/patients that are willing to be contacted by other EB families. Because we want to keep this database available to only other EB families, make sure to reply to the introductory message with your personal EB legacy. Subscribers wishing to join who do not reply to the initial message within 10 days will be automatically denied membership. We do this to secure the families belonging to the database. Thank you!
For more info visit this page on this website...

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Foreign Language Lists!

If anyone speaks the following languages and you are either an EB parent or patient, relative, Dr or Nurse or if you are interested in EB, no matter the form, you are welcome to join.

Italiano/Italian

Portugues/Portuguese

Nederlands/Dutch

Spanish/Espanol

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Living with
Epidermolysis Bullosa
by Silvia C. & Brenda G.

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