Information about EB

EB Families Corner

Parent/Patient Tips

EB Awareness

Leave a Message

The EB Quilt Project 

Our EB community is putting their needles in place to make EB Quilts!

This is done to spread awareness and raise funds for a cure. One of our EB moms, Linnet, is stitching the squares together and making them into beautiful quilts like the ones pictured on this page. 

What do we do with these quilts once they are finished? We donate them to Lynn Anderson for the EBMRF, the Epidermolysis Bullosa Medical Research Foundation . Lynn is involved in several fundraisers throughout the year to raise money for a cure, and she auctions off these quilts.

Family and friends of EB patient Garrett Spaulding made a quilt that brought in $80,000 for EB research at the 2002 Force for Good Gala and Auction in Salt Lake City, Utah!

If you have EB, if your child has EB or if you lost a loved one to EB, I hope you can participate in this project. Once the quilt is finished we will post pictures of it on this website.

Click on the pictures for a much bigger pic to see each individual square!!

If you would like to contribute, here is what you will need:

1. Quilt Square Size 13X13, only decorate or write inside the 10x10
2. Any Fabric
3. You can use any means to decorate/write. Embroidery, Cross-stitching, Iron-on, Fabric Paint.. anything you can think of.
 4. Info that every quilt square should have:
--Name
--Birth date (death)
--Form of EB

If you are interested in making the quilt square let me know so I can let you know the address on where to send it!

Living with
Epidermolysis Bullosa
by Silvia C. & Brenda G.

Get in Gear!
New in the gift shop,
EB awareness
wear and use items!