MaryBeth

Name: MaryBeth Sheridan

Birthday: October 10

Location: Florida, USA

Children with EB: Samantha, 4.5 years old RDEB.

Biography... in her own words:

My name is Marybeth Sheridan. My friends know me by "MB". I am 32 years old. I live in Florida, and I have a very precious little girl named Samantha who suffers from a horrible disease called Epidermolysis Bullosa. I am on the Board of Directors for the Non-profit organization, D.E.B.R.A. (Dystrophic Epidermolysis Bullosa Research Association of America). DEBRA’S mission is to raise money to find a cure or treatment, and to improve the quality of life for those persona, and families who suffer from this dreadful disease. At this time I am one of only two people on the Board, or directly related to this organization that has a personal interest to be there. It is my goal to fill the majority of the board with family members and, or people directly affected by this disease. I am the President and sole owner of a Wholesale Computer Distribution Business in Tampa, Fl., called MB’s Computer Warehouse, Inc. I started the business out of my one bedroom apartment seven years ago. My husband now runs the business because of the care involved with our beautiful daughter, and so I can play an active role in the goal of DEBRA.

I was born in Oakland California and was there until I was 4 years old, then we lived in Pelham, Alabama (my favorite place) until I was 10 years old, and then we moved to St.Petersburg, Florida where I have lived since I was 10 years old. I have been to Congress once to testify before Congressman Bill Young. I testified on a "mothers Point of View" of Epidermolysis Bullosa, and what it is like to live with and care for a child affected by this disease. I am active in bringing community awareness as well as world wide public awareness to Epidermolysis Bullosa. I like to fund raise for our cause, as well as learn and share as much as I can from families and healthcare professionals, and also Wound Care Companies.